Day 47: Blah.


I slept horribly last night.  The blood clot in my neck is giving me a bit of pain, and I have a dry cough that loves to plague me only at night.  I fell asleep around 3:00am, and woke up around 6:00 for vitals and the daily blood draw.  When I got up to use... Continue Reading →

Days 39 – 46: Wow, What a Ride


For as long as I can remember, I have been a fan of roller coasters.  There is something insanely scary and simultaneously thrilling about the rush one gets when propelled at speeds up to 130 MPH, while pulling multiple negative g's that just...well...makes me smile.  🙂 This past September, I had an opportunity to crew... Continue Reading →

Day 25: The Land of the Living


The last time I was able to blog, I mentioned that I was waiting for the results of the biopsy on Tuesday (Day 21 post diagnosis).  The results came back inconclusive, with not enough cells to be able to analyze.  A repeat bone marrow biopsy is scheduled for this Monday afternoon, thankfully under anesthesia again.... Continue Reading →

Days 17-20: Biopsy and the Waiting Game


I'm not a patient person.  I think I might have mentioned that once or twice before.  My mom tells me that it started before I was born.  I was due in mid-September, but come the end of July I couldn't wait anymore and chose to enter the world premature, screaming and fighting.  Being patient takes... Continue Reading →

Day 16: Crying ’til I Laugh


The Big 'D' I slept fitfully last night, thoughts of my hair not far from my mind.  I know it sounds vain, and those of you who know me from Facebook, are aware that I went through this just about a week and a half ago when the doctor told me I would definitely lose... Continue Reading →

Day 15: Good Beginning… Not So Good Ending…


Overnight was rough again, the usual fever and chills.  I meant to mention in yesterday's post that my central line had to be removed in the afternoon, because they suspected that it had become infected.  The culture that returned back gram positive yesterday for Staph infection, led them to believe that it was coming from... Continue Reading →

Day 14: Fever in the Morning . . .


. . . Fever all through the night What a rough night.  Probably the worst night yet.  Had uncontrollable chills, and the fever spiked even higher.  I was given cross matched platelets overnight, to see if that would boost my levels enough to take the chills away a bit.  And then was given another IV... Continue Reading →

Day 13: Stop fighting, already!!


I've been trying to write for days, but every time I get a few minutes, I either get a call... a doctor or nurse walks in... or I am given Benadryl before a transfusion which knocks me out for 4-5 hours or more... or I just plain don't feel well. How's a girl supposed to... Continue Reading →

Day 12, Part 2: A Spoonful of Sugar


Have I got you singing the rest of the song? Earlier today, I determined to try to get myself to a better-feeling place. And, as I close out the night and get ready to go to sleep, my heart and mind are at peace again. I am continually amazed at the power of the mind,... Continue Reading →

Day 12, Part 1: Girl on a Mission


6:30 am: Woke up so cranky. Don't think Ambien agrees with me. Took forever to get to sleep, though I think this was more due to the ultimately anti-climactic countdown to the end of chemo (although, thank you to JK for toasting my milestone with a shot of tequila!). Had an awful nurse last night,... Continue Reading →

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